Dy posted the following on Facebook but I thought all the boardrats would want to know what's going on with her.
So, had a virtual appointment with my neuro-otologist and prognosis is grim
He is putting me on a sedative for the cluster headaches and vistibular migraines and scheduling me to have Endolymphatic sac decompression surgery; his exact words on the report were: " With her medically intractable bilateral Meniere's Diesease....I remain very reluctant to consider destructive options and accordingly that leaves very little available to her"
He told me that with the MDDS, cluster headaches, vistibular migraines and Bilateral Meniere's Disease I am one of only 16% of patients to have Meniere's this bad.
We laughed and laughed and I asked him to buy me a lotto ticket with those odds.
I have to do a fine cut temporal bone CT prior to the surgery and I think that will be around the end of August.
Guess with me, if I'm gonna do something, I may as well go all out!! (But to be honest, I'm actually a bit petrified )